In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention to the challenges, hopes and needs of those affected in support of Rare Disease Day 2018. The annual awareness event, which was founded and arranged by the European Organization for Rare Diseases (EURORDIS), is now […]
‘Hala Madrid!’ We’re excited to be heading to the home of the Los Blancos and the Spanish capital for the first major event in the haemophilia calendar of 2018 – the European Association for Haemophilia and Allied Disorders (EAHAD) Congress, taking place between 7-9 February at the Palacio Municipal. Now into its 11th year, the EAHAD […]
The concept of gene therapy isn’t as new as we might think, having been first mooted in the early ‘70s[i]. At the time, I’m sure my grandad (if he was ever aware of this), would’ve thought it so far out and the stuff of fantasy to ever be possible. After all, he was most probably […]
We’re excited to announce the launch of our new blog series for 2018 called, Factor This! Over the coming months, we’ll be bringing you the essential insights and perspectives of some of the biggest names, influencers and key players across the global haemophilia community. Featuring some of the game changers in research and academia, clinical […]