New Role: Patient Research Team Leader for IMAB-Qi
We’re sharing some news from Laurence Woollard, director of On The Pulse: he has been appointed as Patient Research Team Leader for […]
Category: Research
NEW PUBLICATION: Exploring news media hype around gene therapy
A new editorial, published in the peer-reviewed open access journal Therapeutic Advances in Rare Disease (TAIRD), examines the potential effects of sensationalised […]
Survey launched for UK-based rare disease patient advocacy groups on gene therapy decision aids
A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their […]
Help Shape Future Research with Stop The Bleeding
Do you, or someone you care for, have experience of a bleeding disorder, whether personally or professionally? Stop The Bleeding needs your […]