February 28, 2022September 5, 2023Awareness Days, Events, Media Rare Disease Day 2022 – ‘Patient & Public Involvement in Era of ATMPs’ In celebration of Rare Disease Day 2022, we have partnered with the Association of the British Pharmaceutical Industry (ABPI) to raise awareness […]
February 29, 2020March 8, 2021Awareness Days, Events Rare Disease Day 2020 – Q&A by EUCOPE In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]
February 5, 2018March 4, 2018Awareness Days, Rare Disease Stories Dan Jeffries – A Rarity Personified Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]
January 31, 2018Awareness Days, Events Rare Disease Day 2018 – Join in and #ShowYourRare! In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]