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On The Pulse at the 2018 EHC Conference in Brussels

Posted on Leave a commentPosted in European Haemophilia Consortium, Events

There are only two weeks to go until one of the largest rare bleeding disorders patient gatherings on the continent – the 2018 European Haemophilia Consortium (EHC) Conference! Along with the European Association of Haemophilia and Allied Disorders (EAHAD) Congress and the World Federation of Hemophilia (WFH) World Congress, the EHC Conference is one of the […]

Speech Summary: ‘Patient Perspectives Of Haemophilia Care’

Posted on Leave a commentPosted in European Haemophilia Consortium, Events, Personal Perspectives, Speaking

The furthest east in Europe I’ve ever been, Vilnius in Lithuania was the host capital to the annual European Haemophilia Consortium Conference, which celebrated its 30th anniversary year. It was also a milestone event for me personally, having been asked to speak for the first time as part of an industry-sponsored symposium. The symposium title was, Patients […]

Talking Haemophilia Care: ‘Making Individual Needs Count!’

Posted on Leave a commentPosted in European Haemophilia Consortium, Events, Personal Perspectives

How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you should know? Crikey, what a conundrum! As someone living with haemophilia, I admit, even into my early twenties, I didn’t really know enough about how effective my treatment was for me, the alternatives […]