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    Tag: Community

    The Culture Shift hero image
    November 8, 2018February 8, 2021The Culture Shift

    VIDEO: Announcing Our New Series for 2019, The Culture Shift

    We’re really excited to be announcing the launch of our brand new video series, The Culture Shift, which will be a key […]

    On The Pulse anniversary
    June 27, 2018February 19, 2020Events

    VIDEO: One Year Anniversary of On The Pulse

    On behalf of On The Pulse, we are incredibly proud to be celebrating our first anniversary as a company! These past 12-months […]

    Brian O'Mahony Factor This! feature image
    April 3, 2018June 15, 2018Factor This!

    Factor This! Series: An Interview with Brian O’Mahony

    This year, the Irish Haemophilia Society (IHS) are celebrating their 50th anniversary. At its helm is probably one of the most notable […]

    World Haemophilia Day 2018
    March 27, 2018March 27, 2018Awareness Days, Events

    World Haemophilia Day 2018 – Unlocking the Community’s Potential

    As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]

    Rahul Phulore
    March 20, 2018October 11, 2018Haemophilia Stories

    Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’

    More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]

    Dan Jeffries with his memoirs
    February 5, 2018March 4, 2018Awareness Days, Rare Disease Stories

    Dan Jeffries – A Rarity Personified

    Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]

    Rare Disease Day 2018 logo join
    January 31, 2018Awareness Days, Events

    Rare Disease Day 2018 – Join in and #ShowYourRare!

    In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]

    Factor This!
    January 18, 2018March 4, 2018Factor This!

    Introducing ‘Factor This!’ – A New Feature Blog Series

    We’re excited to announce the launch of our new blog series for 2018 called, Factor This! Over the coming months, we’ll be […]

    Merry Christmas and a happy New Year!
    December 22, 2017January 18, 2018General, Personal Perspectives

    On The Pulse – A Morsel of Reflections and An Enduring Appetite For 2018

    I’m a tad late to the Christmas party with all the feel-good festive updates and extra trimmings of what’s to come for […]

    December 12, 2017February 5, 2018Media, Personal Perspectives

    DNAdigest Interview – Haemophilia Insights and More

    DNAdigest is a non-profit organisation based in Cambridge that works to promote and enable easier and more efficient sharing of genomic data […]

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    • Supriya shankar on Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’
    • Laurence Woollard on The Haemophilia Society Trustee Election 2017 – Reaction
    • Elizabeth Webb on The Haemophilia Society Trustee Election 2017 – Reaction

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