Alex Dowsett (2018)

Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’

Posted Leave a commentPosted in Awareness Days, Haemophilia Stories

Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past the impossible and is still overtaking any doubts of what can be achieved living with a severe bleeding disorder. At just 29 years of age, Alex has been competing consistently at the pinnacle […]

Chris Bombardier Factor This! feature image pt.2

Factor This! Series: An Interview with Chris Bombardier (Part 2 of 2)

Posted Leave a commentPosted in Factor This!, Haemophilia Stories

Chris Bombardier’s extraordinary endeavours have become the stuff of haemophilia folklore. His quest was to scale the Seven Summits, and in doing so, he literally reached the top of the world – the “Goddess Mother of Mountains” we know as Mount Everest! The curveball that makes it all the more jaw-droppingly incredible is that he has severe haemophilia! In […]

A Rare Life Together - Andy & Jackie

A Rare Life Together – Factor-ing in Haemophilia!

Posted 2 CommentsPosted in Awareness Days, Haemophilia Stories

It’s officially Rare Disease Day 2018 – the major event of the year where the global rare disease community come together in unity and solidarity, to champion for our rights and further the rare disease cause (see Rare Disease Day 2018 – Join in and #ShowYourRare) I could have so easily focussed here on what’s happening […]

Chris Bombardier

Factor This! Series: An Interview with Chris Bombardier (Part 1 of 2)

Posted Leave a commentPosted in Factor This!, Haemophilia Stories

In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – Mount Everest! At the turn of the year, Chris followed up this incredible feat by scaling Mount Vinson in Antarctica, which was the last climb in his extraordinary dream of completing the Seven Summits. […]

Abdou and His Haemophilia: ‘I Was Waiting 24 Years For This Moment’

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According to the latest Nescafe advert, we’ll meet nearly 80,000 people in our lifetime. But how many will really make an impact on us? Abdou Diallo certainly has on me. At our first meeting at the World Federation of Hemophilia (WFH) Congress in Orlando in summer 2016, I could tell, just from our initial conversation, that […]