Rare Disease Day 2018 – Join in and #ShowYourRare!
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]
Category: Events
On The Pulse at EAHAD 2018 in Madrid
‘Hala Madrid!’ We’re excited to be heading to the home of the Los Blancos and the Spanish capital for the first major […]
Speech Summary: ‘Patient Perspectives Of Haemophilia Care’
The furthest east in Europe I’ve ever been, Vilnius in Lithuania was the host capital to the annual European Haemophilia Consortium Conference, […]
Talking Haemophilia Care: ‘Making Individual Needs Count!’
How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you […]