WFH 2018 World Congress logo

On The Pulse at the WFH 2018 World Congress in Glasgow

Posted Leave a commentPosted in Events, World Federation of Hemophilia

The countdown to the biggest global gathering of the bleeding disorders community is firmly on!  From May 20-24, we will be amongst thousands of attendees descending on the Scottish Event Campus (SEC) in Glasgow, Scotland for the 33rd biennial World Federation of Hemophilia (WFH) 2018 World Congress. WFH 2018 is one of the most hotly […]

Alex Dowsett (2018)

Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’

Posted Leave a commentPosted in Awareness Days, Haemophilia Stories

Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past the impossible and is still overtaking any doubts of what can be achieved living with a severe bleeding disorder. At just 29 years of age, Alex has been competing consistently at the pinnacle […]

The Haemophilia Society Trustee Election 2017 – Reaction

Posted 2 CommentsPosted in Haemophilia News, Personal Perspectives, The Haemophilia Society

It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee place at The Haemophilia Society. Those of you who know me will appreciate the significance of the charity’s early endorsement and influence on my involvement in the bleeding disorder and wider rare disease […]

Bloodstream Podcast: ‘The Endeavour To Progress’

Posted Leave a commentPosted in Media, Personal Perspectives

Bloodstream is a free monthly podcast for and about the bleeding disorders community, featuring regular news, interviews and informed debates. It is brought to listeners by the National Hemophilia Foundation in the US and is hosted by Patrick James Lynch, Co-founder and CEO of Believe Limited; the digital content agency that produces the podcast. Patrick […]