I was recently invited to share a snapshot about haemophilia in my family for Hello Haemophilia, a new online network that aims to create positive change in the community. Please head over to our Facebook page @PulseInSync where the team have shared the link to learn a little about why I have my rare bleeding […]
According to the latest Nescafe advert, we’ll meet nearly 80,000 people in our lifetime. But how many will really make an impact on us? Abdou Diallo certainly has on me. At our first meeting at the World Federation of Hemophilia (WFH) Congress in Orlando in summer 2016, I could tell, just from our initial conversation, that […]
The furthest east in Europe I’ve ever been, Vilnius in Lithuania was the host capital to the annual European Haemophilia Consortium Conference, which celebrated its 30th anniversary year. It was also a milestone event for me personally, having been asked to speak for the first time as part of an industry-sponsored symposium. The symposium title was, Patients […]
How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you should know? Crikey, what a conundrum! As someone living with haemophilia, I admit, even into my early twenties, I didn’t really know enough about how effective my treatment was for me, the alternatives […]
Bloodstream is a free monthly podcast for and about the bleeding disorders community, featuring regular news, interviews and informed debates. It is brought to listeners by the National Hemophilia Foundation in the US and is hosted by Patrick James Lynch, Co-founder and CEO of Believe Limited; the digital content agency that produces the podcast. Patrick […]
