Rare Disease Day 2020 - Q&A by EUCOPE

Rare Disease Day 2020 – Q&A by EUCOPE

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In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview by the European Confederation of Pharmaceutical Entrepreneurs (EUCOPE). EUCOPE cover a range of trending topics with Laurence in the rare disease field, including patient education and engagement, health literacy, drug discovery and repurposing, […]

VIDEO: Watch Episode 1 of The Culture Shift with Dr Ann Hagell

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The first episode of our brand-new video series, The Culture Shift has finally landed! Watch in full below with our special guest, Dr Ann Hagell, Research Lead at the Association for Young People’s Health. Hear from Ann about why young people’s views are vital to inform health service provision, the influence of peer support, new models […]

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Spotlight on History: Contaminated Blood and the Origins of the Infected Blood Inquiry

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The Infected Blood Inquiry, chaired by Sir Brian Langstaff, is due to begin its public hearings in London on Tuesday 30 April 2019. The inquiry is examining the circumstances in which men, women and children were given contaminated blood and contaminated blood products in the UK, in particular since 1970. As of next week, people […]

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Factor This! Series: In Conversation with John Pasi

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The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional scientist and clinical thought-leader in haemophilia – Professor John Pasi. Since 2003, John has been Professor of Haemostasis and Thrombosis and Honorary Consultant Haematologist at Barts and The London School of Medicine and […]

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On The Pulse at the 2018 EHC Conference in Brussels

Posted on Leave a commentPosted in European Haemophilia Consortium, Events

There are only two weeks to go until one of the largest rare bleeding disorders patient gatherings on the continent – the 2018 European Haemophilia Consortium (EHC) Conference! Along with the European Association of Haemophilia and Allied Disorders (EAHAD) Congress and the World Federation of Hemophilia (WFH) World Congress, the EHC Conference is one of the […]

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Factor This! Series: In Conversation with Mark Skinner

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This month’s guest for our Factor This! blog series needs no introduction. Mark Skinner’s universal reputation as a stalwart advocate and progressive leader for people with bleeding disorders very much precedes him. Mark’s wealth of experience spanning over 30 years, makes his CV read like a How to book for specialising in international public policy […]