Speaking at RAREsummit26: An overview of the Bridging the Gap initiative
On Wednesday 7th October, On The Pulse Director Laurence Woollard will be speaking at RAREsummit26, hosted by CamRARE at the Wellcome Genome […]
Tag: Health literacy
Bridging the Gap: a Midlands-wide service evaluation in inherited bleeding disorders
A new Midlands-wide service evaluation is underway to better understand how people living with inherited bleeding disorders access, understand and use treatment-related […]
Talking informed consent for gene therapy on BloodStream™ podcast
The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from […]
NEW PUBLICATION: Improving informed consent for gene therapy
We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]
READ: Journal article on patient education and gene therapy in haemophilia
We are excited to share the news of our first-ever article being published in the international, peer-reviewed journal, Haemophilia, on the topic […]
Rare Disease Day 2020 – Q&A by EUCOPE
In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]
READ: Exclusive article for Pharmafile on haemophilia & Generation Z
Read the latest article by On The Pulse Director, Laurence Woollard, in an exclusive for Pharmafile entitled, “Haemophilia & Generation Zzzz: Waking […]