World Haemophilia Day 2020 – Special Feature For Rare Revolution Magazine

Posted Leave a commentPosted in Awareness Days, Events, Media

To mark World Haemophilia Day on April 17, we are pleased to have a special feature published online at Rare Revolution magazine entitled, ‘Making Sense of the Headlines: Empowered and Informed Treatment Choice in Haemophilia’. On The Pulse Director, Laurence Woollard, was delighted to co-author the feature with Dr Rich Gorman, an interdisciplinary social scientist […]

WFH 2018 World Congress logo

On The Pulse at the WFH 2018 World Congress in Glasgow

Posted Leave a commentPosted in Events, World Federation of Hemophilia

The countdown to the biggest global gathering of the bleeding disorders community is firmly on!  From May 20-24, we will be amongst thousands of attendees descending on the Scottish Event Campus (SEC) in Glasgow, Scotland for the 33rd biennial World Federation of Hemophilia (WFH) 2018 World Congress. WFH 2018 is one of the most hotly […]

Chris Bombardier

Factor This! Series: An Interview with Chris Bombardier (Part 1 of 2)

Posted Leave a commentPosted in Factor This!, Haemophilia Stories

In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – Mount Everest! At the turn of the year, Chris followed up this incredible feat by scaling Mount Vinson in Antarctica, which was the last climb in his extraordinary dream of completing the Seven Summits. […]