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World Haemophilia Day 2019 – Online Exclusive for PharmaTimes

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It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will unite to increase awareness and understanding of those living with the condition and other bleeding disorders. To mark the occasion, we’re especially pleased to feature exclusively in PharmaTimes online. Hear from On The […]

World Haemophilia Day 2018

World Haemophilia Day 2018 – Unlocking the Community’s Potential

Posted Leave a commentPosted in Awareness Days, Events

As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World Haemophilia Day! This is the one occasion the community really gets to call its own. For 2018, the overarching theme is, Sharing Knowledge Makes Us Stronger. The World Federation of Hemophilia (WFH) want […]

Factor This!

Introducing ‘Factor This!’ – A New Feature Blog Series

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We’re excited to announce the launch of our new blog series for 2018 called, Factor This! Over the coming months, we’ll be bringing you the essential insights and perspectives of some of the biggest names, influencers and key players across the global haemophilia community. Featuring some of the game changers in research and academia, clinical […]

DNAdigest Interview – Haemophilia Insights and More

Posted Leave a commentPosted in Media, Personal Perspectives

DNAdigest is a non-profit organisation based in Cambridge that works to promote and enable easier and more efficient sharing of genomic data to support and progress scientific research into all genetic diseases. With possibly some big genetic discoveries still unidentified or hidden, they are finding alternative pathways for the exchange of information between key stakeholders, […]

The Haemophilia Society Trustee Election 2017 – Reaction

Posted 2 CommentsPosted in Haemophilia News, Personal Perspectives, The Haemophilia Society

It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee place at The Haemophilia Society. Those of you who know me will appreciate the significance of the charity’s early endorsement and influence on my involvement in the bleeding disorder and wider rare disease […]