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World Haemophilia Day 2019 – Online Exclusive for PharmaTimes

Posted Posted in Awareness Days, Events

It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will unite to increase awareness and understanding of those living with the condition and other bleeding disorders. To mark the occasion, we’re especially pleased to feature exclusively in PharmaTimes online. Hear from On The […]

DNAdigest Interview – Haemophilia Insights and More

Posted Posted in Media, Personal Perspectives

DNAdigest is a non-profit organisation based in Cambridge that works to promote and enable easier and more efficient sharing of genomic data to support and progress scientific research into all genetic diseases. With possibly some big genetic discoveries still unidentified or hidden, they are finding alternative pathways for the exchange of information between key stakeholders, […]

The Haemophilia Society Trustee Election 2017 – Reaction

Posted 2 CommentsPosted in Haemophilia News, Personal Perspectives, The Haemophilia Society

It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee place at The Haemophilia Society. Those of you who know me will appreciate the significance of the charity’s early endorsement and influence on my involvement in the bleeding disorder and wider rare disease […]