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Tag: Rare disease

December 15, 2022December 15, 2022General

On The Pulse news round-up for H2 2022

It’s been a busy second half of 2022 at On The Pulse HQ. To close out the year, here’s a round-up of […]

February 28, 2022February 28, 2022Awareness Days, Events, Media

Rare Disease Day 2022 – ‘Patient & Public Involvement in Era of ATMPs’

In celebration of Rare Disease Day 2022, we have partnered with the Association of the British Pharmaceutical Industry (ABPI) to raise awareness […]

November 19, 2021Media

Talking informed consent for gene therapy on BloodStream™ podcast

The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from […]

September 30, 2021November 19, 2021Journal publications

NEW PUBLICATION: Improving informed consent for gene therapy

We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]

January 12, 2021November 19, 2021Media

READ: Article on the ‘Covid Generation’ and health transition

The winter 2020/21 edition of Rare Revolution Magazine is out today, featuring an article from On The Pulse, titled: “Spotlight on the […]

Rare Disease Day 2020 - Q&A by EUCOPE
February 29, 2020March 8, 2021Awareness Days, Events

Rare Disease Day 2020 – Q&A by EUCOPE

In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]

June 28, 2019February 9, 2021The Culture Shift

VIDEO: Watch Episode 1 of The Culture Shift with Dr Ann Hagell

The first episode of our brand-new video series, The Culture Shift has finally landed! Watch in full below with our special guest, Dr […]

Lauren Thompson hero image
May 8, 2019May 8, 2019General

Q&A with Research Placement Student Lauren Thompson

Since the turn of the year, On The Pulse has welcomed into the fold a very enthusiastic and impressive extra pair of […]

Hero image about online exclusive in PharmaTimes
April 17, 2019April 17, 2019Awareness Days, Events

World Haemophilia Day 2019 – Online Exclusive for PharmaTimes

It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will […]

Rare Revolution Rare Blood Edition blog hero image
February 14, 2019February 8, 2021Media

READ: Interview with us by Open Health in Rare Revolution Magazine

We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]

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Recent Comments

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  • Laurence Woollard on A Rare Life Together – Factor-ing in Haemophilia!
  • Scott on A Rare Life Together – Factor-ing in Haemophilia!
  • Laurence Woollard on The Haemophilia Society Trustee Election 2017 – Reaction
  • Elizabeth Webb on The Haemophilia Society Trustee Election 2017 – Reaction

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