Rare Disease Day 2022 – ‘Patient & Public Involvement in Era of ATMPs’

Posted Posted in Awareness Days, Events, Media

In celebration of Rare Disease Day 2022, we have partnered with the Association of the British Pharmaceutical Industry (ABPI) to raise awareness of the importance of patient and public involvement (PPI) to achieve greater access to advanced therapy medicinal products (ATMPs) for rare diseases. ATMPs that aim to repair, replace, regenerate and re-engineer genes, cells […]

NEW PUBLICATION: Improving informed consent for gene therapy

Posted Posted in Journal publications

We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the peer-reviewed, open access journal, Therapeutic Advances in Rare Disease (TAIRD).  On The Pulse director, Laurence Woollard, joined forces with Dr Rich Gorman and Dr Dakota Rosenfelt, to produce the comprehensive paper titled: “Improving […]

READ: Article on the ‘Covid Generation’ and health transition

Posted Posted in Media

The winter 2020/21 edition of Rare Revolution Magazine is out today, featuring an article from On The Pulse, titled: “Spotlight on the ‘Covid Generation’ and transitional healthcare for young people.” This is our third formal contribution to the digital magazine, with this latest issue (No. 018) opening up the conversation on ‘RARE Transition’. On The […]

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Q&A with Research Placement Student Lauren Thompson

Posted Posted in General

Since the turn of the year, On The Pulse has welcomed into the fold a very enthusiastic and impressive extra pair of hands to support our research activities – meet Lauren Thompson. Lauren is currently studying an MSc in Health Psychology at the prestigious King’s College London; one of the UK and world’s top-ranking universities based […]

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World Haemophilia Day 2019 – Online Exclusive for PharmaTimes

Posted Posted in Awareness Days, Events

It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will unite to increase awareness and understanding of those living with the condition and other bleeding disorders. To mark the occasion, we’re especially pleased to feature exclusively in PharmaTimes online. Hear from On The […]

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READ: Interview with us by Open Health in Rare Revolution Magazine

Posted Posted in Media

We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all things rare bleeding disorders.  The five-page in-depth supplement includes On The Pulse director, Laurence Woollard, discussing the work we undertake in the haemophilia and wider rare disease community. The interview also offers insight […]