Factor This! Series: In Conversation with John Pasi
The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional […]
Tag: Rare disease
VIDEO: Announcing Our New Series for 2019, The Culture Shift
We’re really excited to be announcing the launch of our brand new video series, The Culture Shift, which will be a key […]
Findacure – The Cambridge Rare Disease Showcase 2018
The Cambridge-based charity Findacure are hosting the latest instalment of their Rare Disease Showcase in the city centre this Thursday, and we’re […]
VIDEO: One Year Anniversary of On The Pulse
On behalf of On The Pulse, we are incredibly proud to be celebrating our first anniversary as a company! These past 12-months […]
Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’
Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]
World Haemophilia Day 2018 – Unlocking the Community’s Potential
As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]
Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’
More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]
A Rare Life Together – Factor-ing in Haemophilia!
It’s officially Rare Disease Day 2018 – the major event of the year where the global rare disease community come together in […]
Dan Jeffries – A Rarity Personified
Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]
Rare Disease Day 2018 – Join in and #ShowYourRare!
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]