READ: Interview with us by Open Health in Rare Revolution Magazine
We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]
We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]
The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional […]
We’re really excited to be announcing the launch of our brand new video series, The Culture Shift, which will be a key […]
The Cambridge-based charity Findacure are hosting the latest instalment of their Rare Disease Showcase in the city centre this Thursday, and we’re […]
On behalf of On The Pulse, we are incredibly proud to be celebrating our first anniversary as a company! These past 12-months […]
Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]
As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]
More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]
Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]