We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all things rare bleeding disorders.
The 5-page in-depth supplement includes On The Pulse director, Laurence Woollard, discussing the work we undertake in the haemophilia and wider rare disease community. The interview also offers insight and perspective, at a glance, into promising new therapies for haemophilia as well as our aspirations to support and empower young people living with haemophilia to self-manage and self-advocate effectively, and truly realise their full potential.
Read it in its entirety here.
We would like to thank Gavin Jones, Director of Rare Disease at OPEN Health, a global healthcare communications and market access group, for the invitation to take part.
What is Rare Revolution Magazine?
A brand new, first of its kind digital magazine giving a voice to patients and their families impacted by rare conditions, and the charities and organisations that represent and support them.
We’re very proud to call ourselves ‘Rare Revolutionaries’ and endorse this home-grown non-profit venture by two sisters, themselves members of a rare disease family.