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Tag: Clinical trials

December 15, 2022December 15, 2022General

On The Pulse news round-up for H2 2022

It’s been a busy second half of 2022 at On The Pulse HQ. To close out the year, here’s a round-up of […]

March 18, 2022Media

LISTEN: EMG Health Podcast on gene therapy for haemophilia

A bonus episode of the European Medical Group (EMG) Health Podcast features an interview with On The Pulse director, Laurence Woollard and […]

November 19, 2021Media

Talking informed consent for gene therapy on BloodStream™ podcast

The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from […]

September 30, 2021November 19, 2021Journal publications

NEW PUBLICATION: Improving informed consent for gene therapy

We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]

Rare Disease Day 2020 - Q&A by EUCOPE
February 29, 2020March 8, 2021Awareness Days, Events

Rare Disease Day 2020 – Q&A by EUCOPE

In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]

Rare Revolution Rare Blood Edition blog hero image
February 14, 2019February 8, 2021Media

READ: Interview with us by Open Health in Rare Revolution Magazine

We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]

John Pasi Factor This! feature image
December 17, 2018February 8, 2021Factor This!

Factor This! Series: In Conversation with John Pasi

The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional […]

Rahul Phulore
March 20, 2018October 11, 2018Haemophilia Stories

Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’

More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]

Chris Bombardier
February 19, 2018March 4, 2018Factor This!, Haemophilia Stories

Factor This! Series: An Interview with Chris Bombardier (Part 1 of 2)

In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – […]

January 19, 2018March 4, 2018Factor This!

Factor This! Series: An Interview with Dr. Katherine A. High

The concept of gene therapy isn’t as new as we might think, having been first mooted in the early ‘70s[i]. At the […]

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