LISTEN: EMG Health Podcast on gene therapy for haemophilia
A bonus episode of the European Medical Group (EMG) Health Podcast features an interview with On The Pulse director, Laurence Woollard and […]
Tag: Clinical trials
Talking informed consent for gene therapy on BloodStream™ podcast
The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from […]
NEW PUBLICATION: Improving informed consent for gene therapy
We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]
Rare Disease Day 2020 – Q&A by EUCOPE
In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]
READ: Interview with us by Open Health in Rare Revolution Magazine
We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]
Factor This! Series: In Conversation with John Pasi
The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional […]
Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’
More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]
Factor This! Series: An Interview with Chris Bombardier (Part 1 of 2)
In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – […]
Factor This! Series: An Interview with Dr. Katherine A. High
The concept of gene therapy isn’t as new as we might think, having been first mooted in the early ‘70s[i]. At the […]
Haemophilia Making Headlines – Now To Stay In Tune!
Cor blimey, it all went bleedin’ mad! Excuse the pun but the snowball effect of media hype around haemophilia and gene therapy […]