The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from On The Pulse director, Laurence Woollard, talking all things informed consent for gene therapy in haemophilia. Laurence is accompanied by Dr Rich Gorman and Dr Dakota Rosenfelt as they unpack for listeners their recently […]
We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the peer-reviewed, open access journal, Therapeutic Advances in Rare Disease (TAIRD). On The Pulse director, Laurence Woollard, joined forces with Dr Rich Gorman and Dr Dakota Rosenfelt, to produce the comprehensive paper titled: “Improving […]
In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview by the European Confederation of Pharmaceutical Entrepreneurs (EUCOPE). EUCOPE cover a range of trending topics with Laurence in the rare disease field, including patient education and engagement, health literacy, drug discovery and repurposing, […]
We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all things rare bleeding disorders. The five-page in-depth supplement includes On The Pulse director, Laurence Woollard, discussing the work we undertake in the haemophilia and wider rare disease community. The interview also offers insight […]
The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional scientist and clinical thought-leader in haemophilia – Professor John Pasi. Since 2003, John has been Professor of Haemostasis and Thrombosis and Honorary Consultant Haematologist at Barts and The London School of Medicine and […]
More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy my age – 28 – also with severe haemophilia A. Except he was born into a part of the world near Mumbai, where amongst the hustle and bustle of this vibrant Indian city, […]
In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – Mount Everest! At the turn of the year, Chris followed up this incredible feat by scaling Mount Vinson in Antarctica, which was the last climb in his extraordinary dream of completing the Seven Summits. […]
The concept of gene therapy isn’t as new as we might think, having been first mooted in the early ‘70s[i]. At the time, I’m sure my grandad (if he was ever aware of this), would’ve thought it so far out and the stuff of fantasy to ever be possible. After all, he was most probably […]
Cor blimey, it all went bleedin’ mad! Excuse the pun but the snowball effect of media hype around haemophilia and gene therapy positively hit me full in the face! If you happen to follow Professor Michael Makris on Twitter (he truly is someone in the know!), no doubt you would have read his many insights […]
