The winter 2020/21 edition of Rare Revolution Magazine is out today, featuring an article from On The Pulse, entitled: “Spotlight on the ‘Covid Generation’ and transitional healthcare for young people.” This is our third formal contribution to the digital magazine, with this latest issue (No. 018) opening up the conversation on ‘RARE Transition’. On The […]
On The Pulse are delighted to promote and support Findacure‘s Rare Disease Showcase, taking place virtually between 17-19 November 2020. Now in its fifth year, the Rare Disease Showcase series is a celebration of both innovative rare disease projects, and the actors committed to improving research and support for people affected and their families, across the UK. Taking […]
Highlights from the inaugural RAREsummit organised by Cambridge Rare Disease Network (CRDN) and hosted at the Wellcome Genome Campus, are now available to watch here. About RAREsummit RAREsummit was a one day breakthrough event back in September 2019 with the motto ‘Patient as Partners.’ It brought together academics, scientists, medics, investors, entrepreneurs, government ministers […]
Read the latest article by On The Pulse Director, Laurence Woollard, in an exclusive for Pharmafile entitled, “Haemophilia & Generation Zzzz: Waking up young people to new treatment possibilities!” Click here to access the freely available Autumn edition. Here’s an excerpt from the feature that centres on engaging and activating young people living with haemophilia […]
The first episode of our brand-new video series, The Culture Shift has finally landed! Watch in full below with our special guest, Dr Ann Hagell, Research Lead at the Association for Young People’s Health. Hear from Ann about why young people’s views are vital to inform health service provision, the influence of peer support, new models […]
Since the turn of the year, On The Pulse has welcomed into the fold a very enthusiastic and impressive extra pair of hands to support our research activities – meet Lauren Thompson. Lauren is currently studying an MSc in Health Psychology at the prestigious King’s College London; one of the UK and world’s top-ranking universities based […]
It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will unite to increase awareness and understanding of those living with the condition and other bleeding disorders. To mark the occasion, we’re especially pleased to feature exclusively in PharmaTimes online. Hear from On The […]
We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all things rare bleeding disorders. The five-page in-depth supplement includes On The Pulse director, Laurence Woollard, discussing the work we undertake in the haemophilia and wider rare disease community. The interview also offers insight […]
We’re really excited to be announcing the launch of our brand new video series, The Culture Shift, which will be a key fixture of On The Pulse for 2019. The concept for this series stems from our core focus and intent – starting in the UK – of exploring new ways to support and upskill […]
The Cambridge-based charity Findacure are hosting the latest instalment of their Rare Disease Showcase in the city centre this Thursday, and we’re really excited to be part of it! Cambridge is an illustrious hotspot for scientific research, with the likes of the iconic Cambridge Science Park and state-of-the-art Wellcome Genome Campus hosting some of […]
