READ: Article on the ‘Covid Generation’ and health transition

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The winter 2020/21 edition of Rare Revolution Magazine is out today, featuring an article from On The Pulse, entitled: “Spotlight on the ‘Covid Generation’ and transitional healthcare for young people.” This is our third formal contribution to the digital magazine, with this latest issue (No. 018) opening up the conversation on ‘RARE Transition’. On The […]

On The Pulse taking part in Findacure’s Virtual Rare Disease Showcase 2020

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On The Pulse are delighted to promote and support Findacure‘s Rare Disease Showcase, taking place virtually between 17-19 November 2020.  Now in its fifth year, the Rare Disease Showcase series is a celebration of both innovative rare disease projects, and the actors committed to improving research and support for people affected and their families, across the UK. Taking […]

Cambridge Rare Disease Network RAREsummit 2019

VIDEO: Watch the highlights from CRDN RAREsummit 2019

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Highlights from the inaugural RAREsummit organised by Cambridge Rare Disease Network (CRDN) and hosted at the Wellcome Genome Campus, are now available to watch here.   About RAREsummit RAREsummit was a one day breakthrough event back in September 2019 with the motto ‘Patient as Partners.’ It brought together academics, scientists, medics, investors, entrepreneurs, government ministers […]

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READ: Exclusive article for Pharmafile on haemophilia & Generation Z

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Read the latest article by On The Pulse Director, Laurence Woollard, in an exclusive for Pharmafile entitled, “Haemophilia & Generation Zzzz: Waking up young people to new treatment possibilities!” Click here to access the freely available Autumn edition. Here’s an excerpt from the feature that centres on engaging and activating young people living with haemophilia […]

VIDEO: Watch Episode 1 of The Culture Shift with Dr Ann Hagell

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The first episode of our brand-new video series, The Culture Shift has finally landed! Watch in full below with our special guest, Dr Ann Hagell, Research Lead at the Association for Young People’s Health. Hear from Ann about why young people’s views are vital to inform health service provision, the influence of peer support, new models […]

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World Haemophilia Day 2019 – Online Exclusive for PharmaTimes

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It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will unite to increase awareness and understanding of those living with the condition and other bleeding disorders. To mark the occasion, we’re especially pleased to feature exclusively in PharmaTimes online. Hear from On The […]

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READ: Interview with us by Open Health in Rare Revolution Magazine

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We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all things rare bleeding disorders.  The five-page in-depth supplement includes On The Pulse director, Laurence Woollard, discussing the work we undertake in the haemophilia and wider rare disease community. The interview also offers insight […]

Findacure Cambridge Rare Disease Showcase 2018

Findacure – The Cambridge Rare Disease Showcase 2018

Posted Leave a commentPosted in Events, Findacure

The Cambridge-based charity Findacure are hosting the latest instalment of their Rare Disease Showcase in the city centre this Thursday, and we’re really excited to be part of it!   Cambridge is an illustrious hotspot for scientific research, with the likes of the iconic Cambridge Science Park and state-of-the-art Wellcome Genome Campus hosting some of […]