Contaminated blood hero image

Spotlight on History: Contaminated Blood and the Origins of the Infected Blood Inquiry

Posted on Leave a commentPosted in Events, Infected Blood Inquiry

The Infected Blood Inquiry, chaired by Sir Brian Langstaff, is due to begin its public hearings in London on Tuesday 30 April 2019. The inquiry is examining the circumstances in which men, women and children were given contaminated blood and contaminated blood products in the UK, in particular since 1970. As of next week, people […]

Rare Revolution Rare Blood Edition blog hero image

READ: Interview with us by Open Health in Rare Revolution Magazine

Posted on Leave a commentPosted in Media

We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all things rare bleeding disorders.  The 5-page in-depth supplement includes On The Pulse director, Laurence Woollard, discussing the work we undertake in the haemophilia and wider rare disease community. The interview also offers insight […]

John Pasi Factor This! feature image

Factor This! Series: In Conversation with John Pasi

Posted on Leave a commentPosted in Factor This!

The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional scientist and clinical thought-leader in haemophilia – Professor John Pasi. Since 2003, John has been Professor of Haemostasis and Thrombosis and Honorary Consultant Haematologist at Barts and The London School of Medicine and […]

Mark Skinner Feature Image

Factor This! Series: In Conversation with Mark Skinner

Posted on Leave a commentPosted in Factor This!

This month’s guest for our Factor This! blog series needs no introduction. Mark Skinner’s universal reputation as a stalwart advocate and progressive leader for people with bleeding disorders very much precedes him. Mark’s wealth of experience spanning over 30 years, makes his CV read like a How to book for specialising in international public policy […]

Laurie Kelley feature image v2

Factor This! Series: An Interview with Laurie Kelley

Posted on Leave a commentPosted in Factor This!

For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, both at home in America and throughout the developing world.  Over this time, Laurie has cemented her status as one of the most respected and beloved thought leaders in global haemophilia advocacy. Her […]

World Haemophilia Day 2018

World Haemophilia Day 2018 – Unlocking the Community’s Potential

Posted on Leave a commentPosted in Awareness Days, Events

As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World Haemophilia Day! This is the one occasion the community really gets to call its own. For 2018, the overarching theme is, Sharing Knowledge Makes Us Stronger. The World Federation of Hemophilia (WFH) want […]

Chris Bombardier

Factor This! Series: An Interview with Chris Bombardier (Part 1 of 2)

Posted on Leave a commentPosted in Factor This!, Haemophilia Stories

In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – Mount Everest! At the turn of the year, Chris followed up this incredible feat by scaling Mount Vinson in Antarctica, which was the last climb in his extraordinary dream of completing the Seven Summits. […]