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Tag: Healthcare professionals

April 16, 2021November 19, 2021Awareness Days, Events, Media

READ: Commentary in BMJ Opinion on exposing medical paternalism

In recognition of World Haemophilia Day 2021, we are pleased to have our first commentary published in BMJ Opinion, drawing attention to […]

November 29, 2020March 8, 2021Journal publications

READ: Journal article on patient education and gene therapy in haemophilia

We are excited to share the news of our first-ever article being published in the international, peer-reviewed journal, Haemophilia, on the topic […]

April 17, 2020March 8, 2021Awareness Days, Events, Media

World Haemophilia Day 2020 – Special Feature For Rare Revolution Magazine

To mark World Haemophilia Day on April 17, we are pleased to have a special feature published online at Rare Revolution magazine […]

Cambridge Rare Disease Network RAREsummit 2019
February 20, 2020March 8, 2021Events

VIDEO: Watch the highlights from CRDN RAREsummit 2019

Highlights from the inaugural RAREsummit organised by Cambridge Rare Disease Network (CRDN) and hosted at the Wellcome Genome Campus, are now available […]

Pharmafile blog hero image
December 3, 2019February 20, 2020Media

READ: Exclusive article for Pharmafile on haemophilia & Generation Z

Read the latest article by On The Pulse Director, Laurence Woollard, in an exclusive for Pharmafile entitled, “Haemophilia & Generation Zzzz: Waking […]

June 28, 2019February 9, 2021The Culture Shift

VIDEO: Watch Episode 1 of The Culture Shift with Dr Ann Hagell

The first episode of our brand-new video series, The Culture Shift has finally landed! Watch in full below with our special guest, Dr […]

Hero image about online exclusive in PharmaTimes
April 17, 2019April 17, 2019Awareness Days, Events

World Haemophilia Day 2019 – Online Exclusive for PharmaTimes

It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will […]

Rare Revolution Rare Blood Edition blog hero image
February 14, 2019February 8, 2021Media

READ: Interview with us by Open Health in Rare Revolution Magazine

We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]

2018 EHC Conference logo
September 21, 2018European Haemophilia Consortium, Events

On The Pulse at the 2018 EHC Conference in Brussels

There are only two weeks to go until one of the largest rare bleeding disorders patient gatherings on the continent – the […]

Findacure Cambridge Rare Disease Showcase 2018
August 13, 2018November 15, 2020Events, Findacure

Findacure – The Cambridge Rare Disease Showcase 2018

The Cambridge-based charity Findacure are hosting the latest instalment of their Rare Disease Showcase in the city centre this Thursday, and we’re […]

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