Exploring haemophilia care in Europe – an EMJ expert roundtable
On The Pulse Director, Laurence Woollard, MSc, features as an expert guest in a special roundtable hosted by EMJ, discussing the current landscape […]
Tag: Gene therapy
New Episode: Hypothesize That! on Patient Engagement in Gene Therapy
The latest episode of Hypothesize That!, a podcast exploring the future of drug discovery and development, is now live! In Episode 3, […]
NEW PUBLICATION: Exploring news media hype around gene therapy
A new editorial, published in the peer-reviewed open access journal Therapeutic Advances in Rare Disease (TAIRD), examines the potential effects of sensationalised […]
Survey launched for UK-based rare disease patient advocacy groups on gene therapy decision aids
A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their […]
ANNOUNCEMENT: Laurence joins NHS England’s specialised blood disorders Clinical Reference Group (CRG)
We are pleased to announce that Laurence Woollard is joining NHS England’s specialised blood disorders Clinical Reference Group (CRG) in a personal […]
On The Pulse news round-up for H2 2022
It’s been a busy second half of 2022 at On The Pulse HQ. To close out the year, here’s a round-up of […]
LISTEN: EMG Health Podcast on gene therapy for haemophilia
A bonus episode of the European Medical Group (EMG) Health Podcast features an interview with On The Pulse director, Laurence Woollard and […]
Rare Disease Day 2022 – ‘Patient & Public Involvement in Era of ATMPs’
In celebration of Rare Disease Day 2022, we have partnered with the Association of the British Pharmaceutical Industry (ABPI) to raise awareness […]
Talking informed consent for gene therapy on BloodStream™ podcast
The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from […]
NEW PUBLICATION: Improving informed consent for gene therapy
We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]