NEW PUBLICATION: Improving informed consent for gene therapy
We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]
Tag: Gene therapy
READ: Commentary in BMJ Opinion on exposing medical paternalism
In recognition of World Haemophilia Day 2021, we are pleased to have our first commentary published in BMJ Opinion, drawing attention to […]
READ: Journal article on patient education and gene therapy in haemophilia
We are excited to share the news of our first-ever article being published in the international, peer-reviewed journal, Haemophilia, on the topic […]
On The Pulse to participate in the WFH Virtual Summit 2020
The World Federation of Hemophilia (WFH), in an effort to bring the international bleeding disorders community together at this time with COVID-19, is […]
World Haemophilia Day 2020 – Special Feature For Rare Revolution Magazine
To mark World Haemophilia Day on April 17, we are pleased to have a special feature published online at Rare Revolution magazine […]
Rare Disease Day 2020 – Q&A by EUCOPE
In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]
READ: Interview with us by Open Health in Rare Revolution Magazine
We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]
Factor This! Series: In Conversation with John Pasi
The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional […]
Factor This! Series: In Conversation with Flora Peyvandi
It’s goodbye to summer and hello to our first Autumn instalment in our Factor This! blog series. We’re very lucky to feature […]
On The Pulse at the 2018 EHC Conference in Brussels
There are only two weeks to go until one of the largest rare bleeding disorders patient gatherings on the continent – the […]