ABPI Rare Disease Day commentary – Equity in the age of advanced therapies
On The Pulse Director, Laurence Woollard, MSc, has written a commentary for the Association of the British Pharmaceutical Industry (ABPI) in recognition […]
Tag: Haemophilia
Bridging the Gap: a Midlands-wide service evaluation in inherited bleeding disorders
A new Midlands-wide service evaluation is underway to better understand how people living with inherited bleeding disorders access, understand and use treatment-related […]
Exploring haemophilia care in Europe – an EMJ expert roundtable
On The Pulse Director, Laurence Woollard, MSc, features as an expert guest in a special roundtable hosted by EMJ, discussing the current landscape […]
NEW PUBLICATION: Exploring news media hype around gene therapy
A new editorial, published in the peer-reviewed open access journal Therapeutic Advances in Rare Disease (TAIRD), examines the potential effects of sensationalised […]
Speaking engagement: OBN’s ‘BioTuesday’ on rare disease R&D
The November edition of ‘BioTuesday’, organised by OBN, will focus on rare disease research and development (R&D) in the UK and features […]
Survey launched for UK-based rare disease patient advocacy groups on gene therapy decision aids
A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their […]
NEW PUBLICATION: Debating the reclassification of haemophilia
A Letter to the Editor (LTTE) has been published in the latest issue of the highly-regarded Journal of Thrombosis and Haemostasis (JTH), […]
ANNOUNCEMENT: Laurence joins NHS England’s specialised blood disorders Clinical Reference Group (CRG)
We are pleased to announce that Laurence Woollard is joining NHS England’s specialised blood disorders Clinical Reference Group (CRG) in a personal […]
On The Pulse news round-up for H2 2022
It’s been a busy second half of 2022 at On The Pulse HQ. To close out the year, here’s a round-up of […]
On The Pulse participating in the WFH 2022 World Congress in Montréal
We are excited to be participating in-person at the World Federation of Hemophilia (WFH) 2022 World Congress, taking place between Sunday, May […]