Talking informed consent for gene therapy on BloodStream™ podcast
The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from […]
Tag: Caregiver
NEW PUBLICATION: Improving informed consent for gene therapy
We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]
World Haemophilia Day 2020 – Special Feature For Rare Revolution Magazine
To mark World Haemophilia Day on April 17, we are pleased to have a special feature published online at Rare Revolution magazine […]
READ: Interview with us by Open Health in Rare Revolution Magazine
We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]
Factor This! Series: In Conversation with Flora Peyvandi
It’s goodbye to summer and hello to our first Autumn instalment in our Factor This! blog series. We’re very lucky to feature […]
Help Shape Future Research with Stop The Bleeding
Do you, or someone you care for, have experience of a bleeding disorder, whether personally or professionally? Stop The Bleeding needs your […]
Factor This! Series: An Interview with Laurie Kelley
For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]
Rare Disease Day 2018 – Join in and #ShowYourRare!
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]
On The Pulse – A Morsel of Reflections and An Enduring Appetite For 2018
I’m a tad late to the Christmas party with all the feel-good festive updates and extra trimmings of what’s to come for […]
Abdou and His Haemophilia: ‘I Was Waiting 24 Years For This Moment’
According to the latest Nescafe advert, we’ll meet nearly 80,000 people in our lifetime. But how many will really make an impact on […]