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Tag: Caregiver

November 19, 2021Media

Talking informed consent for gene therapy on BloodStream™ podcast

The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from […]

September 30, 2021November 19, 2021Journal publications

NEW PUBLICATION: Improving informed consent for gene therapy

We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]

April 17, 2020March 8, 2021Awareness Days, Events, Media

World Haemophilia Day 2020 – Special Feature For Rare Revolution Magazine

To mark World Haemophilia Day on April 17, we are pleased to have a special feature published online at Rare Revolution magazine […]

Rare Revolution Rare Blood Edition blog hero image
February 14, 2019February 8, 2021Media

READ: Interview with us by Open Health in Rare Revolution Magazine

We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]

Flora Peyvandi Factor This! feature image
October 16, 2018December 15, 2018Factor This!

Factor This! Series: In Conversation with Flora Peyvandi

It’s goodbye to summer and hello to our first Autumn instalment in our Factor This! blog series. We’re very lucky to feature […]

May 30, 2018May 30, 2018Research

Help Shape Future Research with Stop The Bleeding

Do you, or someone you care for, have experience of a bleeding disorder, whether personally or professionally? Stop The Bleeding needs your […]

Laurie Kelley feature image v2
May 10, 2018May 10, 2018Factor This!

Factor This! Series: An Interview with Laurie Kelley

For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]

A Rare Life Together - Andy & Jackie
February 28, 2018March 4, 2018Awareness Days, Haemophilia Stories

A Rare Life Together – Factor-ing in Haemophilia!

It’s officially Rare Disease Day 2018 – the major event of the year where the global rare disease community come together in […]

Rare Disease Day 2018 logo join
January 31, 2018Awareness Days, Events

Rare Disease Day 2018 – Join in and #ShowYourRare!

In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]

Merry Christmas and a happy New Year!
December 22, 2017January 18, 2018General, Personal Perspectives

On The Pulse – A Morsel of Reflections and An Enduring Appetite For 2018

I’m a tad late to the Christmas party with all the feel-good festive updates and extra trimmings of what’s to come for […]

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Recent Comments

  • Supriya shankar on Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’
  • Laurence Woollard on A Rare Life Together – Factor-ing in Haemophilia!
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  • Laurence Woollard on The Haemophilia Society Trustee Election 2017 – Reaction
  • Elizabeth Webb on The Haemophilia Society Trustee Election 2017 – Reaction

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