ABPI Rare Disease Day commentary – Equity in the age of advanced therapies
On The Pulse Director, Laurence Woollard, MSc, has written a commentary for the Association of the British Pharmaceutical Industry (ABPI) in recognition […]
Author: On The Pulse
Bridging the Gap: a Midlands-wide service evaluation in inherited bleeding disorders
A new Midlands-wide service evaluation is underway to better understand how people living with inherited bleeding disorders access, understand and use treatment-related […]
Exploring haemophilia care in Europe – an EMJ expert roundtable
On The Pulse Director, Laurence Woollard, MSc, features as an expert guest in a special roundtable hosted by EMJ, discussing the current landscape […]
New Episode: Hypothesize That! on Patient Engagement in Gene Therapy
The latest episode of Hypothesize That!, a podcast exploring the future of drug discovery and development, is now live! In Episode 3, […]
New Role: Patient Research Team Leader for IMAB-Qi
We’re sharing some news from Laurence Woollard, director of On The Pulse: he has been appointed as Patient Research Team Leader for […]
NEW PUBLICATION: Exploring news media hype around gene therapy
A new editorial, published in the peer-reviewed open access journal Therapeutic Advances in Rare Disease (TAIRD), examines the potential effects of sensationalised […]
Panel Participation at the 2025 European Meeting of ISMPP
The 2025 European Meeting of the International Society for Medical Publication Professionals (ISMPP) is taking place later this month in London and […]
Speaking engagement: OBN’s ‘BioTuesday’ on rare disease R&D
The November edition of ‘BioTuesday’, organised by OBN, will focus on rare disease research and development (R&D) in the UK and features […]
Survey launched for UK-based rare disease patient advocacy groups on gene therapy decision aids
A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their […]
NEW PUBLICATION: Debating the reclassification of haemophilia
A Letter to the Editor (LTTE) has been published in the latest issue of the highly-regarded Journal of Thrombosis and Haemostasis (JTH), […]