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Tag: Rare disease

Factor This!
January 18, 2018March 4, 2018Factor This!

Introducing ‘Factor This!’ – A New Feature Blog Series

We’re excited to announce the launch of our new blog series for 2018 called, Factor This! Over the coming months, we’ll be […]

December 5, 2017December 18, 2017Haemophilia News, Personal Perspectives, The Haemophilia Society

The Haemophilia Society Trustee Election 2017 – Reaction

It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee […]

November 21, 2017February 19, 2020Media, Personal Perspectives

VIDEO: ‘Hello Haemophilia’ a New Community Hub

I was recently invited to share a snapshot about haemophilia in my family for Hello Haemophilia, a new online network that aims […]

October 31, 2017April 21, 2018Haemophilia Stories

Abdou and His Haemophilia: ‘I Was Waiting 24 Years For This Moment’

According to the latest Nescafe advert, we’ll meet nearly 80,000 people in our lifetime. But how many will really make an impact on […]

October 16, 2017January 24, 2018European Haemophilia Consortium, Events, Personal Perspectives, Speaking

Speech Summary: ‘Patient Perspectives Of Haemophilia Care’

The furthest east in Europe I’ve ever been, Vilnius in Lithuania was the host capital to the annual European Haemophilia Consortium Conference, […]

October 4, 2017January 24, 2018European Haemophilia Consortium, Events, Personal Perspectives

Talking Haemophilia Care: ‘Making Individual Needs Count!’

How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you […]

September 18, 2017December 18, 2017Media, Personal Perspectives

Bloodstream Podcast: ‘The Endeavour To Progress’

Bloodstream is a free monthly podcast for and about the bleeding disorders community, featuring regular news, interviews and informed debates. It is […]

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