Survey launched for UK-based rare disease patient advocacy groups on gene therapy decision aids
A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their […]
Tag: The Haemophilia Society
ANNOUNCEMENT: Laurence joins NHS England’s specialised blood disorders Clinical Reference Group (CRG)
We are pleased to announce that Laurence Woollard is joining NHS England’s specialised blood disorders Clinical Reference Group (CRG) in a personal […]
On The Pulse at the WFH 2018 World Congress in Glasgow
The countdown to the biggest global gathering of the bleeding disorders community is firmly on! From May 20-24, we will be amongst […]
Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’
Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]
The Haemophilia Society Trustee Election 2017 – Reaction
It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee […]
Bloodstream Podcast: ‘The Endeavour To Progress’
Bloodstream is a free monthly podcast for and about the bleeding disorders community, featuring regular news, interviews and informed debates. It is […]