On The Pulse Consultancy | Patient Advocacy and Policy | Rare Disease
    • Home
    • About
    • Insights
    • Contact
  • On The Pulse Consultancy | Patient Advocacy and Policy | Rare Disease
    • Home
    • About
    • Insights
    • Contact

    © On The Pulse Consultancy Ltd.

    Author: Laurence Woollard

    Findacure Cambridge Rare Disease Showcase 2018
    August 13, 2018November 15, 2020Events, Findacure

    Findacure – The Cambridge Rare Disease Showcase 2018

    The Cambridge-based charity Findacure are hosting the latest instalment of their Rare Disease Showcase in the city centre this Thursday, and we’re […]

    On The Pulse anniversary
    June 27, 2018February 19, 2020Events

    VIDEO: One Year Anniversary of On The Pulse

    On behalf of On The Pulse, we are incredibly proud to be celebrating our first anniversary as a company! These past 12-months […]

    Alex Dowsett (2018)
    April 17, 2018April 17, 2018Awareness Days, Haemophilia Stories

    Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’

    Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]

    Rahul Phulore
    March 20, 2018October 11, 2018Haemophilia Stories

    Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’

    More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]

    Dan Jeffries with his memoirs
    February 5, 2018March 4, 2018Awareness Days, Rare Disease Stories

    Dan Jeffries – A Rarity Personified

    Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]

    January 19, 2018March 4, 2018Factor This!

    Factor This! Series: An Interview with Dr. Katherine A. High

    The concept of gene therapy isn’t as new as we might think, having been first mooted in the early ‘70s[i]. At the […]

    Merry Christmas and a happy New Year!
    December 22, 2017January 18, 2018General, Personal Perspectives

    On The Pulse – A Morsel of Reflections and An Enduring Appetite For 2018

    I’m a tad late to the Christmas party with all the feel-good festive updates and extra trimmings of what’s to come for […]

    December 18, 2017April 21, 2018Haemophilia News, Personal Perspectives

    Haemophilia Making Headlines – Now To Stay In Tune!

    Cor blimey, it all went bleedin’ mad! Excuse the pun but the snowball effect of media hype around haemophilia and gene therapy […]

    December 12, 2017February 5, 2018Media, Personal Perspectives

    DNAdigest Interview – Haemophilia Insights and More

    DNAdigest is a non-profit organisation based in Cambridge that works to promote and enable easier and more efficient sharing of genomic data […]

    December 5, 2017December 18, 2017Haemophilia News, Personal Perspectives, The Haemophilia Society

    The Haemophilia Society Trustee Election 2017 – Reaction

    It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee […]

    Posts pagination

    1 2 >

    Recent Comments

    • Supriya shankar on Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’
    • Laurence Woollard on The Haemophilia Society Trustee Election 2017 – Reaction
    • Elizabeth Webb on The Haemophilia Society Trustee Election 2017 – Reaction

    Archives

    • April 2025 (1)
    • January 2025 (1)
    • October 2024 (1)
    • April 2024 (1)
    • September 2023 (1)
    • March 2023 (1)
    • December 2022 (1)
    • June 2022 (1)
    • May 2022 (1)
    • April 2022 (1)
    • March 2022 (1)
    • February 2022 (1)
    • November 2021 (1)
    • September 2021 (1)
    • April 2021 (1)
    • February 2021 (1)
    • January 2021 (1)
    • November 2020 (2)
    • June 2020 (1)
    • April 2020 (1)
    • February 2020 (2)
    • December 2019 (1)
    • June 2019 (1)
    • May 2019 (1)
    • April 2019 (2)
    • February 2019 (1)
    • December 2018 (1)
    • November 2018 (1)
    • October 2018 (1)
    • September 2018 (1)
    • August 2018 (2)
    • June 2018 (2)
    • May 2018 (2)
    • April 2018 (3)
    • March 2018 (3)
    • February 2018 (2)
    • January 2018 (4)
    • December 2017 (4)
    • November 2017 (1)
    • October 2017 (3)
    • September 2017 (1)
    On The Pulse is the trading name of On The Pulse Consultancy Ltd. Registered in England No. 10837491.
    Cover Photo By Daniel Stone|
    Branding and web design by Ivil design|
    Website development by Html Studio
    Copyright © 2017-2025 On The Pulse Consultancy Ltd. All rights reserved.
    We use cookies to improve your experience and understand how our site is used. Some cookies may be set by third-party services.
    By continuing to use this site, you agree to our use of cookies as described in our Privacy Policy.
    OkNoRead more