Alex Dowsett (2018)

Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’

Posted Leave a commentPosted in Awareness Days, Haemophilia Stories

Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past the impossible and is still overtaking any doubts of what can be achieved living with a severe bleeding disorder. At just 29 years of age, Alex has been competing consistently at the pinnacle […]

A Rare Life Together - Andy & Jackie

A Rare Life Together – Factor-ing in Haemophilia!

Posted 2 CommentsPosted in Awareness Days, Haemophilia Stories

It’s officially Rare Disease Day 2018 – the major event of the year where the global rare disease community come together in unity and solidarity, to champion for our rights and further the rare disease cause (see Rare Disease Day 2018 – Join in and #ShowYourRare) I could have so easily focussed here on what’s happening […]

DNAdigest Interview – Haemophilia Insights and More

Posted Leave a commentPosted in Media, Personal Perspectives

DNAdigest is a non-profit organisation based in Cambridge that works to promote and enable easier and more efficient sharing of genomic data to support and progress scientific research into all genetic diseases. With possibly some big genetic discoveries still unidentified or hidden, they are finding alternative pathways for the exchange of information between key stakeholders, […]