World Haemophilia Day 2018 – Unlocking the Community’s Potential
As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]
Category: Events
Dan Jeffries – A Rarity Personified
Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]
Rare Disease Day 2018 – Join in and #ShowYourRare!
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]
On The Pulse at EAHAD 2018 in Madrid
‘Hala Madrid!’ We’re excited to be heading to the home of the Los Blancos and the Spanish capital for the first major […]
Speech Summary: ‘Patient Perspectives Of Haemophilia Care’
The furthest east in Europe I’ve ever been, Vilnius in Lithuania was the host capital to the annual European Haemophilia Consortium Conference, […]
Talking Haemophilia Care: ‘Making Individual Needs Count!’
How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you […]