Events

Dan Jeffries – A Rarity Personified

Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]

In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]

‘Hala Madrid!’ We’re excited to be heading to the home of the Los Blancos and the Spanish capital for the first major […]

The furthest east in Europe I’ve ever been, Vilnius in Lithuania was the host capital to the annual European Haemophilia Consortium Conference, […]

How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you […]