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Tag: Bleeds

Hero image about online exclusive in PharmaTimes
April 17, 2019April 17, 2019Awareness Days, Events

World Haemophilia Day 2019 – Online Exclusive for PharmaTimes

It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will […]

The Culture Shift hero image
November 8, 2018February 8, 2021The Culture Shift

VIDEO: Announcing Our New Series for 2019, The Culture Shift

We’re really excited to be announcing the launch of our brand new video series, The Culture Shift, which will be a key […]

Glenn Pierce Factor This! blog feature image
August 28, 2018September 20, 2018Factor This!

Factor This! Series – In Conversation with Glenn Pierce

After a short mid-summer break from our Factor This! blog series, our latest edition for August has landed. We’re very pleased to […]

Alex Dowsett (2018)
April 17, 2018April 17, 2018Awareness Days, Haemophilia Stories

Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’

Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]

Brian O'Mahony Factor This! feature image
April 3, 2018June 15, 2018Factor This!

Factor This! Series: An Interview with Brian O’Mahony

This year, the Irish Haemophilia Society (IHS) are celebrating their 50th anniversary. At its helm is probably one of the most notable […]

Rahul Phulore
March 20, 2018October 11, 2018Haemophilia Stories

Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’

More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]

A Rare Life Together - Andy & Jackie
February 28, 2018March 4, 2018Awareness Days, Haemophilia Stories

A Rare Life Together – Factor-ing in Haemophilia!

It’s officially Rare Disease Day 2018 – the major event of the year where the global rare disease community come together in […]

Chris Bombardier
February 19, 2018March 4, 2018Factor This!, Haemophilia Stories

Factor This! Series: An Interview with Chris Bombardier (Part 1 of 2)

In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – […]

December 18, 2017April 21, 2018Haemophilia News, Personal Perspectives

Haemophilia Making Headlines – Now To Stay In Tune!

Cor blimey, it all went bleedin’ mad! Excuse the pun but the snowball effect of media hype around haemophilia and gene therapy […]

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