April 25, 2019Events, Infected Blood Inquiry Spotlight on History: Contaminated Blood and the Origins of the Infected Blood Inquiry The Infected Blood Inquiry, chaired by Sir Brian Langstaff, is due to begin its public hearings in London on Tuesday 30 April […]
October 16, 2018December 15, 2018Factor This! Factor This! Series: In Conversation with Flora Peyvandi It’s goodbye to summer and hello to our first Autumn instalment in our Factor This! blog series. We’re very lucky to feature […]
September 21, 2018European Haemophilia Consortium, Events On The Pulse at the 2018 EHC Conference in Brussels There are only two weeks to go until one of the largest rare bleeding disorders patient gatherings on the continent – the […]
April 3, 2018June 15, 2018Factor This! Factor This! Series: An Interview with Brian O’Mahony This year, the Irish Haemophilia Society (IHS) are celebrating their 50th anniversary. At its helm is probably one of the most notable […]
March 20, 2018October 11, 2018Haemophilia Stories Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’ More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]
January 31, 2018Awareness Days, Events Rare Disease Day 2018 – Join in and #ShowYourRare! In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]