Speaking engagement: OBN’s ‘BioTuesday’ on rare disease R&D
The November edition of ‘BioTuesday’, organised by OBN, will focus on rare disease research and development (R&D) in the UK and features […]
Tag: Hemophilia
Survey launched for UK-based rare disease patient advocacy groups on gene therapy decision aids
A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their […]
NEW PUBLICATION: Debating the reclassification of haemophilia
A Letter to the Editor (LTTE) has been published in the latest issue of the highly-regarded Journal of Thrombosis and Haemostasis (JTH), […]
On The Pulse news round-up for H2 2022
It’s been a busy second half of 2022 at On The Pulse HQ. To close out the year, here’s a round-up of […]
On The Pulse participating in the WFH 2022 World Congress in Montréal
We are excited to be participating in-person at the World Federation of Hemophilia (WFH) 2022 World Congress, taking place between Sunday, May […]
Partnering with Prime Global to Recognise World Haemophilia Day 2022
To mark World Haemophilia Day on April 17, we have partnered with the medical communications and market access company, Prime Global and […]
LISTEN: EMG Health Podcast on gene therapy for haemophilia
A bonus episode of the European Medical Group (EMG) Health Podcast features an interview with On The Pulse director, Laurence Woollard and […]
Talking informed consent for gene therapy on BloodStream™ podcast
The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from […]
NEW PUBLICATION: Improving informed consent for gene therapy
We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]
READ: Commentary in BMJ Opinion on exposing medical paternalism
In recognition of World Haemophilia Day 2021, we are pleased to have our first commentary published in BMJ Opinion, drawing attention to […]