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    Tag: Hemophilia

    April 3, 2025April 3, 2025Journal publications, Research

    NEW PUBLICATION: Exploring news media hype around gene therapy

    A new editorial, published in the peer-reviewed open access journal Therapeutic Advances in Rare Disease (TAIRD), examines the potential effects of sensationalised […]

    October 29, 2024October 29, 2024Events, Rare diseases

    Speaking engagement: OBN’s ‘BioTuesday’ on rare disease R&D

    The November edition of ‘BioTuesday’, organised by OBN, will focus on rare disease research and development (R&D) in the UK and features […]

    April 18, 2024May 13, 2024Health policy, Rare diseases, Research

    Survey launched for UK-based rare disease patient advocacy groups on gene therapy decision aids

    A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their […]

    September 21, 2023April 19, 2024Journal publications

    NEW PUBLICATION: Debating the reclassification of haemophilia

    A Letter to the Editor (LTTE) has been published in the latest issue of the highly-regarded Journal of Thrombosis and Haemostasis (JTH), […]

    December 15, 2022January 28, 2025General

    On The Pulse news round-up for H2 2022

    It’s been a busy second half of 2022 at On The Pulse HQ. To close out the year, here’s a round-up of […]

    May 5, 2022September 5, 2023Events, World Federation of Hemophilia

    On The Pulse participating in the WFH 2022 World Congress in Montréal

    We are excited to be participating in-person at the World Federation of Hemophilia (WFH) 2022 World Congress, taking place between Sunday, May […]

    April 21, 2022September 5, 2023Awareness Days, Media

    Partnering with Prime Global to Recognise World Haemophilia Day 2022

    To mark World Haemophilia Day on April 17, we have partnered with the medical communications and market access company, Prime Global and […]

    March 18, 2022September 5, 2023Media

    LISTEN: EMG Health Podcast on gene therapy for haemophilia

    A bonus episode of the European Medical Group (EMG) Health Podcast features an interview with On The Pulse director, Laurence Woollard and […]

    November 19, 2021September 5, 2023Media

    Talking informed consent for gene therapy on BloodStream™ podcast

    The latest episode of BloodStream™, a bleeding disorders community podcast, is now freely available to listen to, featuring a guest appearance from […]

    September 30, 2021September 5, 2023Journal publications

    NEW PUBLICATION: Improving informed consent for gene therapy

    We are excited to share our latest review article on informed consent practices in the age of genetic medicines, published in the […]

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