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Tag: Patient advocacy

Pharmafile blog hero image
December 3, 2019February 20, 2020Media

READ: Exclusive article for Pharmafile on haemophilia & Generation Z

Read the latest article by On The Pulse Director, Laurence Woollard, in an exclusive for Pharmafile entitled, “Haemophilia & Generation Zzzz: Waking […]

2018 EHC Conference logo
September 21, 2018European Haemophilia Consortium, Events

On The Pulse at the 2018 EHC Conference in Brussels

There are only two weeks to go until one of the largest rare bleeding disorders patient gatherings on the continent – the […]

Glenn Pierce Factor This! blog feature image
August 28, 2018September 20, 2018Factor This!

Factor This! Series – In Conversation with Glenn Pierce

After a short mid-summer break from our Factor This! blog series, our latest edition for August has landed. We’re very pleased to […]

Findacure Cambridge Rare Disease Showcase 2018
August 13, 2018November 15, 2020Events, Findacure

Findacure – The Cambridge Rare Disease Showcase 2018

The Cambridge-based charity Findacure are hosting the latest instalment of their Rare Disease Showcase in the city centre this Thursday, and we’re […]

Mark Skinner Feature Image
June 30, 2018June 30, 2018Factor This!

Factor This! Series: In Conversation with Mark Skinner

This month’s guest for our Factor This! blog series needs no introduction. Mark Skinner’s universal reputation as a stalwart advocate and progressive […]

On The Pulse anniversary
June 27, 2018February 19, 2020Events

VIDEO: One Year Anniversary of On The Pulse

On behalf of On The Pulse, we are incredibly proud to be celebrating our first anniversary as a company! These past 12-months […]

Laurie Kelley feature image v2
May 10, 2018May 10, 2018Factor This!

Factor This! Series: An Interview with Laurie Kelley

For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]

WFH 2018 World Congress logo
April 30, 2018April 30, 2018Events, World Federation of Hemophilia

On The Pulse at the WFH 2018 World Congress in Glasgow

The countdown to the biggest global gathering of the bleeding disorders community is firmly on!  From May 20-24, we will be amongst […]

World Haemophilia Day 2018
March 27, 2018March 27, 2018Awareness Days, Events

World Haemophilia Day 2018 – Unlocking the Community’s Potential

As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]

Rahul Phulore
March 20, 2018October 11, 2018Haemophilia Stories

Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’

More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]

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