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Tag: Patient

April 17, 2020March 8, 2021Awareness Days, Events, Media

World Haemophilia Day 2020 – Special Feature For Rare Revolution Magazine

To mark World Haemophilia Day on April 17, we are pleased to have a special feature published online at Rare Revolution magazine […]

John Pasi Factor This! feature image
December 17, 2018February 8, 2021Factor This!

Factor This! Series: In Conversation with John Pasi

The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional […]

Laurie Kelley feature image v2
May 10, 2018May 10, 2018Factor This!

Factor This! Series: An Interview with Laurie Kelley

For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]

WFH 2018 World Congress logo
April 30, 2018April 30, 2018Events, World Federation of Hemophilia

On The Pulse at the WFH 2018 World Congress in Glasgow

The countdown to the biggest global gathering of the bleeding disorders community is firmly on!  From May 20-24, we will be amongst […]

A Rare Life Together - Andy & Jackie
February 28, 2018March 4, 2018Awareness Days, Haemophilia Stories

A Rare Life Together – Factor-ing in Haemophilia!

It’s officially Rare Disease Day 2018 – the major event of the year where the global rare disease community come together in […]

Dan Jeffries with his memoirs
February 5, 2018March 4, 2018Awareness Days, Rare Disease Stories

Dan Jeffries – A Rarity Personified

Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]

Rare Disease Day 2018 logo join
January 31, 2018Awareness Days, Events

Rare Disease Day 2018 – Join in and #ShowYourRare!

In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]

November 21, 2017February 19, 2020Media, Personal Perspectives

VIDEO: ‘Hello Haemophilia’ a New Community Hub

I was recently invited to share a snapshot about haemophilia in my family for Hello Haemophilia, a new online network that aims […]

October 31, 2017April 21, 2018Haemophilia Stories

Abdou and His Haemophilia: ‘I Was Waiting 24 Years For This Moment’

According to the latest Nescafe advert, we’ll meet nearly 80,000 people in our lifetime. But how many will really make an impact on […]

October 4, 2017January 24, 2018European Haemophilia Consortium, Events, Personal Perspectives

Talking Haemophilia Care: ‘Making Individual Needs Count!’

How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you […]

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