WFH Virtual Summit 2020

On The Pulse to participate in the WFH Virtual Summit 2020

Posted Leave a commentPosted in Events, World Federation of Hemophilia

The World Federation of Hemophilia (WFH), in an effort to bring the international bleeding disorders community together at this time with COVID-19, is hosting a six-day virtual summit that is free for attendees to take part in. This year’s edition of the biennial WFH meeting – originally scheduled to take place in Kuala Lumpur, Malaysia – […]

World Haemophilia Day 2020 – Special Feature For Rare Revolution Magazine

Posted Leave a commentPosted in Awareness Days, Events, Media

To mark World Haemophilia Day on April 17, we are pleased to have a special feature published online at Rare Revolution magazine entitled, ‘Making Sense of the Headlines: Empowered and Informed Treatment Choice in Haemophilia’. On The Pulse Director, Laurence Woollard, was delighted to co-author the feature with Dr Rich Gorman, an interdisciplinary social scientist […]

Rare Disease Day 2020 - Q&A by EUCOPE

Rare Disease Day 2020 – Q&A by EUCOPE

Posted Leave a commentPosted in Awareness Days, Events

In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview by the European Confederation of Pharmaceutical Entrepreneurs (EUCOPE). EUCOPE cover a range of trending topics with Laurence in the rare disease field, including patient education and engagement, health literacy, drug discovery and repurposing, […]

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World Haemophilia Day 2019 – Online Exclusive for PharmaTimes

Posted Leave a commentPosted in Awareness Days, Events

It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will unite to increase awareness and understanding of those living with the condition and other bleeding disorders. To mark the occasion, we’re especially pleased to feature exclusively in PharmaTimes online. Hear from On The […]

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Factor This! Series: In Conversation with Flora Peyvandi

Posted Leave a commentPosted in Factor This!

It’s goodbye to summer and hello to our first Autumn instalment in our Factor This! blog series. We’re very lucky to feature one of the most internationally recognised haematologists of our time – Professor Flora Peyvandi. Flora has justifiably earned this reputation through her extensive portfolio of basic and medical science research, primarily into the […]

2018 EHC Conference logo

On The Pulse at the 2018 EHC Conference in Brussels

Posted Leave a commentPosted in European Haemophilia Consortium, Events

There are only two weeks to go until one of the largest rare bleeding disorders patient gatherings on the continent – the 2018 European Haemophilia Consortium (EHC) Conference! Along with the European Association of Haemophilia and Allied Disorders (EAHAD) Congress and the World Federation of Hemophilia (WFH) World Congress, the EHC Conference is one of the […]

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Factor This! Series: In Conversation with Mark Skinner

Posted Leave a commentPosted in Factor This!

This month’s guest for our Factor This! blog series needs no introduction. Mark Skinner’s universal reputation as a stalwart advocate and progressive leader for people with bleeding disorders very much precedes him. Mark’s wealth of experience spanning over 30 years, makes his CV read like a How to book for specialising in international public policy […]

WFH 2018 World Congress logo

On The Pulse at the WFH 2018 World Congress in Glasgow

Posted Leave a commentPosted in Events, World Federation of Hemophilia

The countdown to the biggest global gathering of the bleeding disorders community is firmly on!  From May 20-24, we will be amongst thousands of attendees descending on the Scottish Event Campus (SEC) in Glasgow, Scotland for the 33rd biennial World Federation of Hemophilia (WFH) 2018 World Congress. WFH 2018 is one of the most hotly […]