Mark Skinner Feature Image

Factor This! Series: In Conversation with Mark Skinner

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This month’s guest for our Factor This! blog series needs no introduction. Mark Skinner’s universal reputation as a stalwart advocate and progressive leader for people with bleeding disorders very much precedes him. Mark’s wealth of experience spanning over 30 years, makes his CV read like a How to book for specialising in international public policy […]

WFH 2018 World Congress logo

On The Pulse at the WFH 2018 World Congress in Glasgow

Posted Leave a commentPosted in Events, World Federation of Hemophilia

The countdown to the biggest global gathering of the bleeding disorders community is firmly on!  From May 20-24, we will be amongst thousands of attendees descending on the Scottish Event Campus (SEC) in Glasgow, Scotland for the 33rd biennial World Federation of Hemophilia (WFH) 2018 World Congress. WFH 2018 is one of the most hotly […]

Alex Dowsett (2018)

Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’

Posted Leave a commentPosted in Awareness Days, Haemophilia Stories

Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past the impossible and is still overtaking any doubts of what can be achieved living with a severe bleeding disorder. At just 29 years of age, Alex has been competing consistently at the pinnacle […]

World Haemophilia Day 2018

World Haemophilia Day 2018 – Unlocking the Community’s Potential

Posted Leave a commentPosted in Awareness Days, Events

As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World Haemophilia Day! This is the one occasion the community really gets to call its own. For 2018, the overarching theme is, Sharing Knowledge Makes Us Stronger. The World Federation of Hemophilia (WFH) want […]