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Tag: On The Pulse
Factor This! Series: An Interview with Laurie Kelley
For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]
On The Pulse at the WFH 2018 World Congress in Glasgow
The countdown to the biggest global gathering of the bleeding disorders community is firmly on! From May 20-24, we will be amongst […]
World Haemophilia Day 2018 – Unlocking the Community’s Potential
As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]
Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’
More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]
Rare Disease Day 2018 – Join in and #ShowYourRare!
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]
On The Pulse at EAHAD 2018 in Madrid
‘Hala Madrid!’ We’re excited to be heading to the home of the Los Blancos and the Spanish capital for the first major […]
Factor This! Series: An Interview with Dr. Katherine A. High
The concept of gene therapy isn’t as new as we might think, having been first mooted in the early ‘70s[i]. At the […]
Introducing ‘Factor This!’ – A New Feature Blog Series
We’re excited to announce the launch of our new blog series for 2018 called, Factor This! Over the coming months, we’ll be […]
On The Pulse – A Morsel of Reflections and An Enduring Appetite For 2018
I’m a tad late to the Christmas party with all the feel-good festive updates and extra trimmings of what’s to come for […]