World Haemophilia Day 2020 – Special Feature For Rare Revolution Magazine
To mark World Haemophilia Day on April 17, we are pleased to have a special feature published online at Rare Revolution magazine […]
Tag: Patient
Factor This! Series: In Conversation with John Pasi
The working year is nearly over but we’re thrilled to be rounding off our Factor This! blog series with yet another exceptional […]
Factor This! Series: An Interview with Laurie Kelley
For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]
On The Pulse at the WFH 2018 World Congress in Glasgow
The countdown to the biggest global gathering of the bleeding disorders community is firmly on! From May 20-24, we will be amongst […]
Dan Jeffries – A Rarity Personified
Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]
Rare Disease Day 2018 – Join in and #ShowYourRare!
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]
VIDEO: ‘Hello Haemophilia’ a New Community Hub
I was recently invited to share a snapshot about haemophilia in my family for Hello Haemophilia, a new online network that aims […]
Abdou and His Haemophilia: ‘I Was Waiting 24 Years For This Moment’
According to the latest Nescafe advert, we’ll meet nearly 80,000 people in our lifetime. But how many will really make an impact on […]
Talking Haemophilia Care: ‘Making Individual Needs Count!’
How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you […]