Haemophilia Making Headlines – Now To Stay In Tune!
Cor blimey, it all went bleedin’ mad! Excuse the pun but the snowball effect of media hype around haemophilia and gene therapy […]
DNAdigest Interview – Haemophilia Insights and More
DNAdigest is a non-profit organisation based in Cambridge that works to promote and enable easier and more efficient sharing of genomic data […]
The Haemophilia Society Trustee Election 2017 – Reaction
It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee […]
VIDEO: ‘Hello Haemophilia’ a New Community Hub
I was recently invited to share a snapshot about haemophilia in my family for Hello Haemophilia, a new online network that aims […]
Abdou and His Haemophilia: ‘I Was Waiting 24 Years For This Moment’
According to the latest Nescafe advert, we’ll meet nearly 80,000 people in our lifetime. But how many will really make an impact on […]
Speech Summary: ‘Patient Perspectives Of Haemophilia Care’
The furthest east in Europe I’ve ever been, Vilnius in Lithuania was the host capital to the annual European Haemophilia Consortium Conference, […]
Talking Haemophilia Care: ‘Making Individual Needs Count!’
How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you […]
Bloodstream Podcast: ‘The Endeavour To Progress’
Bloodstream is a free monthly podcast for and about the bleeding disorders community, featuring regular news, interviews and informed debates. It is […]