A Rare Life Together - Andy & Jackie

A Rare Life Together – Factor-ing in Haemophilia!

Posted 2 CommentsPosted in Awareness Days, Haemophilia Stories

It’s officially Rare Disease Day 2018 – the major event of the year where the global rare disease community come together in unity and solidarity, to champion for our rights and further the rare disease cause (see Rare Disease Day 2018 – Join in and #ShowYourRare) I could have so easily focussed here on what’s happening […]

Chris Bombardier

Factor This! Series: An Interview with Chris Bombardier (Part 1 of 2)

Posted Leave a commentPosted in Factor This!, Haemophilia Stories

In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – Mount Everest! At the turn of the year, Chris followed up this incredible feat by scaling Mount Vinson in Antarctica, which was the last climb in his extraordinary dream of completing the Seven Summits. […]

Factor This!

Introducing ‘Factor This!’ – A New Feature Blog Series

Posted Leave a commentPosted in Factor This!

We’re excited to announce the launch of our new blog series for 2018 called, Factor This! Over the coming months, we’ll be bringing you the essential insights and perspectives of some of the biggest names, influencers and key players across the global haemophilia community. Featuring some of the game changers in research and academia, clinical […]

DNAdigest Interview – Haemophilia Insights and More

Posted Leave a commentPosted in Media, Personal Perspectives

DNAdigest is a non-profit organisation based in Cambridge that works to promote and enable easier and more efficient sharing of genomic data to support and progress scientific research into all genetic diseases. With possibly some big genetic discoveries still unidentified or hidden, they are finding alternative pathways for the exchange of information between key stakeholders, […]