December 5, 2017December 18, 2017Haemophilia News, Personal Perspectives, The Haemophilia Society The Haemophilia Society Trustee Election 2017 – Reaction It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee […]
November 21, 2017February 19, 2020Media, Personal Perspectives VIDEO: ‘Hello Haemophilia’ a New Community Hub I was recently invited to share a snapshot about haemophilia in my family for Hello Haemophilia, a new online network that aims […]
October 31, 2017April 21, 2018Haemophilia Stories Abdou and His Haemophilia: ‘I Was Waiting 24 Years For This Moment’ According to the latest Nescafe advert, we’ll meet nearly 80,000 people in our lifetime. But how many will really make an impact on […]
October 16, 2017January 24, 2018European Haemophilia Consortium, Events, Personal Perspectives, Speaking Speech Summary: ‘Patient Perspectives Of Haemophilia Care’ The furthest east in Europe I’ve ever been, Vilnius in Lithuania was the host capital to the annual European Haemophilia Consortium Conference, […]
October 4, 2017January 24, 2018European Haemophilia Consortium, Events, Personal Perspectives Talking Haemophilia Care: ‘Making Individual Needs Count!’ How do you know what you don’t know? Who’s opening the channels of dialogue for you to begin to know what you […]
September 18, 2017December 18, 2017Media, Personal Perspectives Bloodstream Podcast: ‘The Endeavour To Progress’ Bloodstream is a free monthly podcast for and about the bleeding disorders community, featuring regular news, interviews and informed debates. It is […]