Partnering with Prime Global to Recognise World Haemophilia Day 2022
To mark World Haemophilia Day on April 17, we have partnered with the medical communications and market access company, Prime Global and […]
Category: Awareness Days
Rare Disease Day 2022 – ‘Patient & Public Involvement in Era of ATMPs’
In celebration of Rare Disease Day 2022, we have partnered with the Association of the British Pharmaceutical Industry (ABPI) to raise awareness […]
READ: Commentary in BMJ Opinion on exposing medical paternalism
In recognition of World Haemophilia Day 2021, we are pleased to have our first commentary published in BMJ Opinion, drawing attention to […]
World Haemophilia Day 2020 – Special Feature For Rare Revolution Magazine
To mark World Haemophilia Day on April 17, we are pleased to have a special feature published online at Rare Revolution magazine […]
Rare Disease Day 2020 – Q&A by EUCOPE
In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]
World Haemophilia Day 2019 – Online Exclusive for PharmaTimes
It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will […]
Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’
Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]
World Haemophilia Day 2018 – Unlocking the Community’s Potential
As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]
Dan Jeffries – A Rarity Personified
Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]
Rare Disease Day 2018 – Join in and #ShowYourRare!
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]