Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’
More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]
Tag: Bleeding disorder
Factor This! Series: An Interview with Chris Bombardier (Part 2 of 2)
Chris Bombardier’s extraordinary endeavours have become the stuff of haemophilia folklore. His quest was to scale the Seven Summits, and in doing so, he literally reached […]
Factor This! Series: An Interview with Chris Bombardier (Part 1 of 2)
In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – […]
Rare Disease Day 2018 – Join in and #ShowYourRare!
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]
Factor This! Series: An Interview with Dr. Katherine A. High
The concept of gene therapy isn’t as new as we might think, having been first mooted in the early ‘70s[i]. At the […]
Introducing ‘Factor This!’ – A New Feature Blog Series
We’re excited to announce the launch of our new blog series for 2018 called, Factor This! Over the coming months, we’ll be […]
On The Pulse – A Morsel of Reflections and An Enduring Appetite For 2018
I’m a tad late to the Christmas party with all the feel-good festive updates and extra trimmings of what’s to come for […]
Haemophilia Making Headlines – Now To Stay In Tune!
Cor blimey, it all went bleedin’ mad! Excuse the pun but the snowball effect of media hype around haemophilia and gene therapy […]
DNAdigest Interview – Haemophilia Insights and More
DNAdigest is a non-profit organisation based in Cambridge that works to promote and enable easier and more efficient sharing of genomic data […]
The Haemophilia Society Trustee Election 2017 – Reaction
It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee […]