Rare Disease Day 2018 – Join in and #ShowYourRare!
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]
Tag: Hemophilia
On The Pulse at EAHAD 2018 in Madrid
‘Hala Madrid!’ We’re excited to be heading to the home of the Los Blancos and the Spanish capital for the first major […]
Factor This! Series: An Interview with Dr. Katherine A. High
The concept of gene therapy isn’t as new as we might think, having been first mooted in the early ‘70s[i]. At the […]
Introducing ‘Factor This!’ – A New Feature Blog Series
We’re excited to announce the launch of our new blog series for 2018 called, Factor This! Over the coming months, we’ll be […]
On The Pulse – A Morsel of Reflections and An Enduring Appetite For 2018
I’m a tad late to the Christmas party with all the feel-good festive updates and extra trimmings of what’s to come for […]
Haemophilia Making Headlines – Now To Stay In Tune!
Cor blimey, it all went bleedin’ mad! Excuse the pun but the snowball effect of media hype around haemophilia and gene therapy […]
DNAdigest Interview – Haemophilia Insights and More
DNAdigest is a non-profit organisation based in Cambridge that works to promote and enable easier and more efficient sharing of genomic data […]
The Haemophilia Society Trustee Election 2017 – Reaction
It has been a busy few weeks at On The Pulse HQ, not least because I applied for the one vacant Trustee […]
VIDEO: ‘Hello Haemophilia’ a New Community Hub
I was recently invited to share a snapshot about haemophilia in my family for Hello Haemophilia, a new online network that aims […]
Abdou and His Haemophilia: ‘I Was Waiting 24 Years For This Moment’
According to the latest Nescafe advert, we’ll meet nearly 80,000 people in our lifetime. But how many will really make an impact on […]