Factor This! Series: An Interview with Laurie Kelley
For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]
For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]
The countdown to the biggest global gathering of the bleeding disorders community is firmly on! From May 20-24, we will be amongst […]
Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]
This year, the Irish Haemophilia Society (IHS) are celebrating their 50th anniversary. At its helm is probably one of the most notable […]
As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]
More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]
Chris Bombardier’s extraordinary endeavours have become the stuff of haemophilia folklore. His quest was to scale the Seven Summits, and in doing so, he literally reached […]
In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – […]
In four weeks time, the global rare disease community will join together and stand as one to highlight and bring public attention […]
‘Hala Madrid!’ We’re excited to be heading to the home of the Los Blancos and the Spanish capital for the first major […]