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    Tag: Hemophilia

    On The Pulse anniversary
    June 27, 2018February 19, 2020Events

    VIDEO: One Year Anniversary of On The Pulse

    On behalf of On The Pulse, we are incredibly proud to be celebrating our first anniversary as a company! These past 12-months […]

    May 30, 2018May 30, 2018Research

    Help Shape Future Research with Stop The Bleeding

    Do you, or someone you care for, have experience of a bleeding disorder, whether personally or professionally? Stop The Bleeding needs your […]

    Laurie Kelley feature image v2
    May 10, 2018May 10, 2018Factor This!

    Factor This! Series: An Interview with Laurie Kelley

    For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]

    WFH 2018 World Congress logo
    April 30, 2018April 30, 2018Events, World Federation of Hemophilia

    On The Pulse at the WFH 2018 World Congress in Glasgow

    The countdown to the biggest global gathering of the bleeding disorders community is firmly on!  From May 20-24, we will be amongst […]

    Alex Dowsett (2018)
    April 17, 2018April 17, 2018Awareness Days, Haemophilia Stories

    Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’

    Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]

    Brian O'Mahony Factor This! feature image
    April 3, 2018June 15, 2018Factor This!

    Factor This! Series: An Interview with Brian O’Mahony

    This year, the Irish Haemophilia Society (IHS) are celebrating their 50th anniversary. At its helm is probably one of the most notable […]

    World Haemophilia Day 2018
    March 27, 2018March 27, 2018Awareness Days, Events

    World Haemophilia Day 2018 – Unlocking the Community’s Potential

    As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]

    Rahul Phulore
    March 20, 2018October 11, 2018Haemophilia Stories

    Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’

    More than two weeks ago, I received a Facebook message from Rahul Phulore. He’d just undergone gene therapy. This is a guy […]

    Chris Bombardier Factor This! feature image pt.2
    March 4, 2018April 21, 2018Factor This!, Haemophilia Stories

    Factor This! Series: An Interview with Chris Bombardier (Part 2 of 2)

    Chris Bombardier’s extraordinary endeavours have become the stuff of haemophilia folklore. His quest was to scale the Seven Summits, and in doing so, he literally reached […]

    Chris Bombardier
    February 19, 2018March 4, 2018Factor This!, Haemophilia Stories

    Factor This! Series: An Interview with Chris Bombardier (Part 1 of 2)

    In May 2017, Chris Bombardier defied multiple odds by becoming the first person living with haemophilia to summit the highest mountain on Earth – […]

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    Recent Comments

    • Supriya shankar on Rahul and His Haemophilia: ‘It Was Like the First Day of My New Life!’
    • Laurence Woollard on The Haemophilia Society Trustee Election 2017 – Reaction
    • Elizabeth Webb on The Haemophilia Society Trustee Election 2017 – Reaction

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