Survey launched for UK-based rare disease patient advocacy groups on gene therapy decision aids
A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their […]
Tag: Research
Believe Limited and On The Pulse announce new partnership
On The Pulse is pleased to announce a new partnership that will see director, Laurence Woollard, script and host the Global Hemophilia […]
On The Pulse taking part in Findacure’s Virtual Rare Disease Showcase 2020
On The Pulse are delighted to promote and support Findacure‘s Rare Disease Showcase, taking place virtually between 17-19 November 2020. Now in its fifth year, […]
Rare Disease Day 2020 – Q&A by EUCOPE
In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]
VIDEO: Watch Episode 1 of The Culture Shift with Dr Ann Hagell
The first episode of our brand-new video series, The Culture Shift has finally landed! Watch in full below with our special guest, Dr […]
Q&A with Research Placement Student Lauren Thompson
Since the turn of the year, On The Pulse has welcomed into the fold a very enthusiastic and impressive extra pair of […]
READ: Interview with us by Open Health in Rare Revolution Magazine
We’re delighted to feature in the latest edition of Rare Revolution Magazine entitled ‘RARE Blood’, which is shining a spotlight on all […]
Factor This! Series: In Conversation with Flora Peyvandi
It’s goodbye to summer and hello to our first Autumn instalment in our Factor This! blog series. We’re very lucky to feature […]
Factor This! Series – In Conversation with Glenn Pierce
After a short mid-summer break from our Factor This! blog series, our latest edition for August has landed. We’re very pleased to […]
Findacure – The Cambridge Rare Disease Showcase 2018
The Cambridge-based charity Findacure are hosting the latest instalment of their Rare Disease Showcase in the city centre this Thursday, and we’re […]