Rare Disease Day 2020 – Q&A by EUCOPE
In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]
In recognition of Rare Disease Day 2020, On The Pulse director, Laurence Woollard, was put in the hot seat for an interview […]
It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will […]
It’s goodbye to summer and hello to our first Autumn instalment in our Factor This! blog series. We’re very lucky to feature […]
There are only two weeks to go until one of the largest rare bleeding disorders patient gatherings on the continent – the […]
After a short mid-summer break from our Factor This! blog series, our latest edition for August has landed. We’re very pleased to […]
This month’s guest for our Factor This! blog series needs no introduction. Mark Skinner’s universal reputation as a stalwart advocate and progressive […]
For almost three decades, Laureen Kelley has dedicated herself to educating and improving the lives of individuals and families impacted by haemophilia, […]
The countdown to the biggest global gathering of the bleeding disorders community is firmly on! From May 20-24, we will be amongst […]
Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]
This year, the Irish Haemophilia Society (IHS) are celebrating their 50th anniversary. At its helm is probably one of the most notable […]