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    Category: Events

    Cambridge Rare Disease Network RAREsummit 2019
    February 20, 2020March 8, 2021Events

    VIDEO: Watch the highlights from CRDN RAREsummit 2019

    Highlights from the inaugural RAREsummit organised by Cambridge Rare Disease Network (CRDN) and hosted at the Wellcome Genome Campus, are now available […]

    Contaminated blood hero image
    April 25, 2019Events, Infected Blood Inquiry

    Spotlight on History: Contaminated Blood and the Origins of the Infected Blood Inquiry

    The Infected Blood Inquiry, chaired by Sir Brian Langstaff, is due to begin its public hearings in London on Tuesday 30 April […]

    Hero image about online exclusive in PharmaTimes
    April 17, 2019April 17, 2019Awareness Days, Events

    World Haemophilia Day 2019 – Online Exclusive for PharmaTimes

    It’s that special time of the year again… April 17 is officially World Haemophilia Day! People across the global haemophilia community will […]

    2018 EHC Conference logo
    September 21, 2018European Haemophilia Consortium, Events

    On The Pulse at the 2018 EHC Conference in Brussels

    There are only two weeks to go until one of the largest rare bleeding disorders patient gatherings on the continent – the […]

    Findacure Cambridge Rare Disease Showcase 2018
    August 13, 2018November 15, 2020Events, Findacure

    Findacure – The Cambridge Rare Disease Showcase 2018

    The Cambridge-based charity Findacure are hosting the latest instalment of their Rare Disease Showcase in the city centre this Thursday, and we’re […]

    On The Pulse anniversary
    June 27, 2018February 19, 2020Events

    VIDEO: One Year Anniversary of On The Pulse

    On behalf of On The Pulse, we are incredibly proud to be celebrating our first anniversary as a company! These past 12-months […]

    WFH 2018 World Congress logo
    April 30, 2018April 30, 2018Events, World Federation of Hemophilia

    On The Pulse at the WFH 2018 World Congress in Glasgow

    The countdown to the biggest global gathering of the bleeding disorders community is firmly on!  From May 20-24, we will be amongst […]

    Alex Dowsett (2018)
    April 17, 2018April 17, 2018Awareness Days, Haemophilia Stories

    Cyclist Alex Dowsett: ‘Haemophilia is the Catalyst to My Success!’

    Few rare disease communities can boast of having a champion cyclist to call their own. In haemophilia, Alex Dowsett has pedalled past […]

    World Haemophilia Day 2018
    March 27, 2018March 27, 2018Awareness Days, Events

    World Haemophilia Day 2018 – Unlocking the Community’s Potential

    As global annual awareness days go, 17 April is undoubtedly the most significant for those affected by bleeding disorders – it’s World […]

    Dan Jeffries with his memoirs
    February 5, 2018March 4, 2018Awareness Days, Rare Disease Stories

    Dan Jeffries – A Rarity Personified

    Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are […]

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    Recent Comments

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    • Laurence Woollard on The Haemophilia Society Trustee Election 2017 – Reaction
    • Elizabeth Webb on The Haemophilia Society Trustee Election 2017 – Reaction

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